Wednesday, December 23, 2015

Ah rahighty-(thanks mconahay...) Leg update

legs and keyboards

Dear Diary...
The  last twelve months at least, or maybe longer, down at the beach where I will Continue to speedsail with the top end speedsailing boards I have finally been able to afford (cos I am getting over chop and short hops and junps- YUK!),

  •  there was a feeling that the down haul effort in rigging  a sail for windsurfing- NO- SPEEDSAILING,  was getting increasingly harder to do while rigging up for Speed Sailing on my short sailboards, and that was, that is wow, - what the...!$%#!!!!

Rigging up-bIt is the main thing before hitting the water!

Hmm. So let's have a little look..

Okay. A little more Effort needed- or in what way is my MS can be affecting me over the duration...
I know wrong sub text, it (MS) Will Not Go Away..

Alrighty- it is hard to impossible to use the right leg to down haul a 5 to 8 m2 sail properly [to FULL strength as I once knew!] now and the left leg right leg combo- still need support- action/reaction right!!?- I mean the instructions are Tension TO HERE .... and as I am a Picaso as to perfection- .... and I do as what the wind says, and I hate house painting anyway...

Ok- preparation...

Ok- so now I have/bought a downhaul crank, [FIXED that MS!] and I should be able to use arm and shoulders for the next ten years... I hope and wish!!

Think I have got around it a bit.

And NOW  the right leg is still WEAK, even going up/down stairs. Weird as, "STRAIGHT LEG to GROUND..." aint right- what am I doing?!


And I am NOW having to think which leg forward, and even more - STEPPING over an obstacle- I really have to watch where I am going so not to leave the left foot last-- It Has to be be first as I cannot quite manage to casually drag it over a sill! That is- when on a ship, there are heaps of water  tight  doors--- Step up AND now, and dog the door after you too...  Lotsa co-ordination for that more than once a day (ah, exercise?).
But if in a hurry- nah, seems ok. That is adapation.. I like that at least!
And the right leg seems to be sloppy walking- is it MS?

Anyway,carrying on as though it aint affecting the life style, fmnk my MS!

Friday, August 28, 2015

symptoms kinds recognised

symptoms kinds recognised

Quick listing.
double vision sort of 1984, but very tired
Numbness noticed 2005-2006- hmm thats weird
loss of detecting colour intensity e.g. redness, 2008
Lhermitts- definitely by 2010

Loss of sensation in any area of body
Lhermitte’s sign 
Electrical sensation which travels down back and into the limbs when head is flexed forward, may only cause mild tingling in limbs
Vision problems
  • Optic neuritis: an inflammation of optic nerve causing reduced vision or blindness, often sudden
  • Double vision or diplopia
  • Reduced contrast sensitivity
  • Internuclear ophthalmoplegia or INO, resulting in blurred vision
Feeling of overwhelming tiredness which can be severe and debilitating
Bladder dysfunction
Increased urinary frequency, urgency, dribbling, hesitancy, or incontinence
  • Paresthesia: tingling or “pins and needles”
  • Somatic pain
  • Headache (may be comorbid with MS)
  • Trigeminal neuralgia: pain in the nerves of the face
  • Paraplegia: weakness in both legs
  • Possible weakness in legs, arms, hands, hip flexors, shins, or other muscle groups

Wednesday, December 3, 2014

Dec 2014

dec 2014
cold weird feeling end of left foot
nil bidy twinges
last MRI, no new developments since last year
all good
and new medcine as capsules[/] rather than injections. sounds real good

Saturday, June 14, 2014

this date, mid June-2014

this date, mid June-

have had slight numbness over a coin size area of pointer knuckle right hand for a few months

extreme tiredness One day- weird.

Weakness in right leg one day- sort of collapsed mid step walking down stairway to ground? interesting, once only.

Extreme weakness combined with lack of sleep resulting in walking and falling over- or was that a few drinks?

Some tingling down the legs with bending the neck, a few times a month but not for more than when it is noticed- odd- like it is not all the time!

Eyesight in left side appears to be returning to ful strength after nearly 21 months- still could not count on reading with it alone, but driving and all else- just fine. And about time too- 6 weeks recovery my thin ass.

Monday, September 23, 2013

post august '13 consult- not too bad

post august '13 consult- not too bad

Dr 'D' says of the last MRI in July, a new pea sized lesion in the brain. The post august '13 consult- not too bad after all!

Great. Well. Well. Well. Three holes in the desert... Was there a little superiority noted by self when the doc could not see how to view three CD's of MRI images at once? Yep. But she did appreciate the tip- if a program is on disk, then copy it and data files to temp folder, and use it to resuscitate a "dead" imaging file on a "faulty" CD, and then go and compare the annual file images- Voila! Well, it took a little time out of the following patients time  I reckon, but then, learning never hurt anyone... Unless a diagnoses learnt does... Argh.

Was nice to say to her that since I have been on one of the recommended treatment that there has been no significant relapses since the left eye deal last year, the week before the new consulting job.

The last few months have been relatively free of the numb and tingly symptoms too, but have noticed that there is a slight relaxation in the bladder control after urinating, the last few drops manage to spoil things, and this is rare, and after dinner too. Weird.  A fold of the willy in the jocks is a fix I think..

Which means that the post august '13 consult- not too bad result is good. It is still only a mild onset of MS.  The capoxone may be holding off symptoms- just think that a oral tablet treatment would be less stressful and worrisome when working in the desert if more work comes up- keeping it cool may be a hassle.

Wednesday, July 17, 2013

Latest scan- mmm

Latest scan- mmm

Not being a specialist- from the data disks that I can access of the grey crap in my noggin- I cannot tell what is going on.
I think that the pea sized bodies in there are the same.
Looking for schleria[?] on the left eye nerve myself showed me nuthin, nuthin, nuthin.

Will have to wait for next visit to see what E.Butler and co. can find.

The left eye situation varies day to day oddly enough- sometimes I can read sentences and the road looks gret as well, or, vision seems greyed over, and words hard to make out.

Different every day.

Latest scan, mmm. I cannot tell whether status quo is as last year or not. Bugger.