tag:blogger.com,1999:blog-44193228371870105882024-02-08T16:34:28.904+11:00DaggyDad & MSDocumenting probable onset of MS in a middle-aged bloke with kids at homeUnknownnoreply@blogger.comBlogger28125tag:blogger.com,1999:blog-4419322837187010588.post-14988985914871997752020-04-06T03:12:00.003+10:002020-04-06T03:12:53.016+10:00Change the med?Go onto new med?<br />
<br />
present one has not been too bad holding things back, but the neuro at the last consult reckons with a leg getting gimpier, maybe stronger med would be better.<br />
<br />
With the Corvid19 situation, not a great Idea, lower immune response not the way to go.<br />
<br />
No eye fire as described last blog, just the same really, although the right limbs are not the same as the left limbs- that is noticeabler now, and finding a creack in the path is getting easier to trip over too, aha bugger.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-54044072155335076712019-12-09T13:44:00.004+11:002020-08-17T12:10:40.534+10:00latest episode not going blind but way too weirdlast episode of the ms<br />
<br />
first week december 2019<br />
<br />
working after 5pm on the desktop<br />
could not quite focus at the say small end of the hour arn of a clock at position 8, like the last word as reading was what? what? refocus to the left, there is the word, uh ha.<br />
<br />
what, blinking.<br />
<br />
check again, alternate eyes<br />
<br />
whoa<br />
<br />
like a small unfocused spot all of a sudden to the left of the word been focused on.<br />
<br />
both eyes?<br />
<br />
sort of.<br />
<br />
wow, getting bigger, like a stain or a little wildfire.<br />
<br />
definitely not able to read to the left of the focus spot- "corner of the eye" was I going blind?<br />
<br />
I know that there is a "blind spot" where the visual nerve buldles leave the eyeball- a small area of nothing that you just do not notice.<br />
<br />
this was not, it was getting bigger- and after hours to call anyone and panic them too.<br />
<br />
whan I say stain, maybe like when paper is burning or charring, as it spread, a small colourful sparkling boundary line tending to spread out from the new blind spot- and that area was still to the bottomish left of the visual scope- but not to one eye- like in a a region of the brain where the signal went and was processed and fed to "me"- my mind's screen if you like. and spreading to say the most of the left field of view.<br />
in my head.<br />
<br />
there was still a signal- light was noticed just not focused- blurred like in that area with the little sparkly line advancing- expanding, like a grass fire across a field. or bacteria expanding across a plate on the agar.<br />
ahahahahahahahahahaaaaaaaah<br />
<br />
then- the effect was gone.<br />
panic over?<br />
no lasting effect like the original scary blindness in 2012.<br />
<br />
what the hell<br />
<br />
ever noticed what happens when with eyes closed, and pressing gently on the eyeball there is a sensation of "light" opposite in the field of blank or dark view from the pressure?<br />
was not like that.<br />
<br />pstscript (?)<br />another way to describe it- cardboard- if it smoulders away rather than burns, then imagine a sheet with a point in the middle starting to smoulder and spread, becomes a ring of say red, like a roughly expanding circle. <div>aftereffect- nothing I think- just a bloody frig<br />
<br /></div>Unknownnoreply@blogger.com0A440, Sale VIC 3850, Australia-38.111417850770351 147.06841597500761-38.111808350770353 147.06778547500761 -38.11102735077035 147.06904647500761tag:blogger.com,1999:blog-4419322837187010588.post-55955353345151583852014-12-04T10:58:00.002+11:002014-12-04T10:58:35.141+11:00Dec 2014dec 2014<br />
currently<br />
cold weird feeling end of left foot<br />
nil bidy twinges<br />
last MRI, no new developments since last year<br />
all good<br />
and new medcine as capsules[/] rather than injections. sounds real goodUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-76909762738517482022014-06-14T17:35:00.000+10:002014-06-14T17:35:10.743+10:00this date, mid June-2014<h2>
this date, mid June-</h2>
<br />
have had slight numbness over a coin size area of pointer knuckle right hand for a few months<br />
<br />
extreme tiredness One day- weird.<br />
<br />
Weakness in right leg one day- sort of collapsed mid step walking down stairway to ground? interesting, once only.<br />
<br />
Extreme weakness combined with lack of sleep resulting in walking and falling over- or was that a few drinks?<br />
<br />
Some tingling down the legs with bending the neck, a few times a month but not for more than when it is noticed- odd- like it is not all the time!<br />
<br />
Eyesight in left side appears to be returning to ful strength after nearly 21 months- still could not count on reading with it alone, but driving and all else- just fine. And about time too- 6 weeks recovery my thin ass.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-40948378859707850792013-11-23T19:51:00.002+11:002013-11-24T14:27:24.260+11:00last PostThanks for the interest. goodbye<br />
<br />
<a href="http://daggydad.blogspot.com.au/" rel="nofollow" target="_blank">moving it to here</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-34999848105088077282013-09-24T13:28:00.001+10:002013-09-24T13:28:12.370+10:00post august '13 consult- not too bad<h2>
post august '13 consult- not too bad</h2>
<div>
Dr 'D' says of the last MRI in July, a new pea sized lesion in the brain. The post august '13 consult- not too bad after all!</div>
<div>
<br /></div>
<div>
Great. Well. Well. Well. Three holes in the desert... Was there a little superiority noted by self when the doc could not see how to view three CD's of MRI images at once? Yep. But she did appreciate the tip- if a program is on disk, then copy it and data files to temp folder, and use it to resuscitate a "dead" imaging file on a "faulty" CD, and then go and compare the annual file images- Voila! Well, it took a little time out of the following patients time I reckon, but then, learning never hurt anyone... Unless a diagnoses learnt does... Argh.</div>
<div>
<br /></div>
<div>
Was nice to say to her that since I have been on one of the recommended treatment that there has been no significant relapses since the left eye deal last year, the week before the new consulting job.</div>
<div>
<br /></div>
<div>
The last few months have been <i>relatively </i>free of the numb and tingly symptoms too, but have noticed that there is a slight relaxation in the bladder control after urinating, the last few drops manage to spoil things, and this is rare, and after dinner too. Weird. A fold of the willy in the jocks is a fix I think..</div>
<div>
<br /></div>
<div>
Which means that the post august '13 consult- not too bad result is good. It is still only a mild onset of MS. The capoxone may be holding off symptoms- just think that a oral tablet treatment would be less stressful and worrisome when working in the desert if more work comes up- keeping it cool may be a hassle.</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-81955478710714306622013-07-18T13:21:00.002+10:002013-07-18T13:21:52.668+10:00Latest scan- mmm<h2>
Latest scan- mmm</h2>
<div>
<br /></div>
<div>
Not being a specialist- from the data disks that I can access of the grey crap in my noggin- I cannot tell what is going on.</div>
<div>
I think that the pea sized bodies in there are the same.</div>
<div>
Looking for schleria[?] on the left eye nerve myself showed me nuthin, nuthin, nuthin.</div>
<div>
<br /></div>
<div>
Will have to wait for next visit to see what E.Butler and co. can find.</div>
<div>
<br /></div>
<div>
The left eye situation varies day to day oddly enough- sometimes I can read sentences and the road looks gret as well, or, vision seems greyed over, and words hard to make out.</div>
<div>
<br /></div>
<div>
Different every day.</div>
<div>
<br /></div>
<div>
Latest scan, mmm. I cannot tell whether status quo is as last year or not. Bugger.</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-30847718251668695492013-07-12T15:11:00.000+10:002013-07-12T15:11:00.529+10:00Nine months<h2>
Nine months</h2>
<h4>
On copoxane</h4>
Since the start of the course of medicine-"copoxane", very occasionally there are little tingly feelings in back and sometimes in the legs.<br />
No episode or attack on the temple.<br />
MRI next week, to see how well(?) the leedle pea bodies in the grey matter are growing.<br />
Thought the effect of colourlessness in the left eye would be bad for the job- at least a little bit, but no, not affecting the job as long as someone else can verify we are calling a red "red" etc etc.<br />
Wonder about reading street trraffic signs from afar though- better not have an attack on the right eye- else will be no good for reading/driving/describing rock colours or seeing what needs to be recognised.<br />
Not depressed- just amazed at evolution, and coping strategies the DNA deals out.<br />
<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-47706013878348826792013-05-05T23:10:00.002+10:002013-05-05T23:10:51.765+10:00misbehaving visionAS i TRY TO WRITE THERE IS A broken RING IN MY VISION<br />
<br />
Yes, a new symptom of my version of MS I reckon.<br />
<br />
Only about an hour ago, there was speckling occurring, a shimmering or glittering like a thin curving squiggly line nearly in my line of sight.<br />
<br />
It was a 3/4 circle almost. A fracture there.<br />
<br />
It was smaller, like less than a palm width at arms length.<br />
<br />
Now as I write it is to the left, with both eyes shut or open, very slowly spreading like waves from a dropped pebble in a still pond.<br />
<br />
I thought at first I had looked at the desk lamp, the old image of what is left when staring at then away from something.<br />
<br />
No, it is glistening, a line, snakey or zigzaggy. Pixellation. Is it fading away?<br />
<br />
Great, my work depends on Looking at things, and driving too.<br />
<br />
<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-4419322837187010588.post-52282846529247447372013-04-28T11:19:00.000+10:002013-04-28T11:52:57.251+10:00technical help<h2>
I finally tracked down a help group</h2>
<br />
After the annual extra-large-family- gathering at Easter time, where one can spend four days literally catching up with nothing in particular but renew kinships at the same time, I was persuaded to join up with a MS help group by my aunt, a long term MS sufferer.<br />
<br />
"Aunty" * showed me a Copaxone Injector Kit that looked pretty awesome in it's use. No needle shock as it were and easy to use. She made me practise a lot with a done syringe for half an hour. Even then, by myself using the kit, I still forgot to remove the red cap- wasteful- all over the floor when I realised. But then, I have wasted two others too! Anyway.<br />
<br />
Some prehistory- just a few weeks before, up early like 5am for work and I was doing the self injecting thing, and not really noticing how I was holding the dang thing, and must have paused and drew back some-a little bit- blood back- Well when I realised THAT it looked like a red blob in the syringe- I went- CONTAMINATION ARFHGH$%^! Dummy! I took the needle out almost straight away and went into a calamity-oh-WTF-is-going-to-happen mode, and went and laid down on my bed.<br />
I was feeling weak.<br />
Then hot.<br />
Shakey.<br />
Could I call out to the kids?<br />
No- was instantly asthmatic!<br />
Cold.<br />
Spasms wracked my baddish back most intently.<br />
Needed to evacuate the bottom end.<br />
In the rush to the loo, there was an urge to throw up as well.<br />
Get there, hot, cold, shakey,<br />
and<br />
Nuthin'...<br />
<br />
Creaked my way back to the bed over-thinking what can I do? Aids? How did the thing get through quality control etc etc.<br />
<br />
Anyway- ten minutes later or so- felt fine, like a plague had <b>not</b> got me feeling so weird, not contaminated with an instant deadly virus after all!<br />
<br />
When back at work, I did the quick rounds later on, of "Help me" type calls: the pharmacist and aunty, and they said- "shock is all, probably happen a few times the next few years, just a typical reaction".<br />
<br />
Me- sure...<br />
<br />
Oh yes, I do remember reading that too...<br />
<br />
Anyway- back to Easter- my aunt encouraged me to grab a help bag kit- "autoinject2". Alright.<br />
<br />
I had previously sent off to the Copaxone Help group, but the Join Us note had Never Arrived I was to find out.<br />
<br />
I called the help line on the mobile phone at lunch time the Friday after Easter- leaving a message that I had tried to get in touch in November...? <br />
<br />
A few hours late, a call back. From "Pip! Call me Pip!" And how could she help me?<br />
<br />
Well- my life story and a bit of quiet shock from the other end and then a pat on the back for how well I was going all by myself- but now she knew what to do for me, and would be keeping in touch and sending a help-pack and all.<br />
<br />
Help pack with auto-inject kit arrived by HDL special delivery----<br />
<br />
MONDAY morning!<br />
<br />
And a few weeks later a call back.<br />
<br />
That's great. Just need to attend the MS groups that meet around here at odd times- I completely forgot the last one.<br />
<br />
Ah well. Not taking the MS thing lying down, but then it has not really knocked me about that much, like some people I know now- speaking of which- NS and camcer did take Chrissie Amplett of the <a href="http://en.wikipedia.org/wiki/Divinyls"><span style="background-color: white; font-family: arial, sans-serif; font-size: 30px; line-height: 24.66666603088379px;"><span id="goog_1971126995"></span>Divinyls<span id="goog_1971126996"></span></span> </a>way the other week, that was sad as she was from over the Bay from me as a kid and my age about. Bugger.<br />
<br />
Still walking and talking, I still have the odd tingles below the waist, but not as intensely as the initial feelings, nor has the eye sight been affected again, but then, nor has the left eye completely recovered, but I can type this so it must be getting better.<br />
<br />
By the way, I have just finished reading a few great books or three on my Kindle#2-<br />
"Power,Sex Suicide : Mitochondria and the meaning of life" by Nick Lane and<br />
"Life's Ratchet : How Molecular Machines Extract Order From Chaos" by Peter F. Hoffman.<br />
That was a few intense weeks I tell you! Highly recommended to everyone.<br />
<br />
<br />
<br />
<br />
*And she probably might hate that moniker as she is only 12 years older than me!Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-8739575731912788432013-02-10T13:35:00.000+11:002013-02-10T13:35:29.024+11:00Twinge hereTwinge there<br />
<br />
The last month, been little twinges as neck as nodded the old noggin, down the legs, for a day anyway, but not as bad as the first time.<br />
<br />
maybe the Copaxone is alleviating symptoms.<br />
<br />
With new work had to put off 6 month appointment for a month...Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-40342527961934854272012-11-25T23:56:00.000+11:002012-11-25T23:56:06.298+11:00Huh did not hurrt<h2>
Huh it Did Hurt later</h2>
<br />
A week into the new self shot medicine that does not hurt to do.<br />
<br />
But it does man, a few days there is still an Ow to feel where the shot went in!<br />
<br />
Bugger drugs! Man, a sore spot like that will take a while to get used to.<br />
<br />
The left eye is still recovering, I can read the key board much better than a few weeks ago anyway.<br />
<br />
White cars are still not White though.<br />
<br />
What a bugger.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-70642697190601869022012-11-20T11:15:00.001+11:002012-11-20T11:15:28.764+11:00Ready squint...Oh<h2>
Set up a Injection Seminar</h2>
<br />
I saw the local GP's nurse today as far as the instructions for using [haha] Copaxone wants me to do, especially for the first use anyway.<br />
<br />
"Like diabetes patients have to", said Lauren, who was quite supportive.<br />
<br />
So I did my first self injection with: a squint and a n d o k, p u s h i n . ...<br />
<br />
OH?<br />
<br />
Never felt a thing!<br />
<br />
<i>Shultz </i>like- "Ah feeled Nudink!"<br />
<br />
Afterwards, there is the stinging as was fore warned about, but there you go.<br />
<br />
BTW, the eye trouble did not wink away...Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-26815930440444893102012-11-19T19:19:00.001+11:002012-11-19T19:19:19.059+11:00Tomorrow a new start<h2>
Prescription for a New Start</h2>
<div>
A prescription arrived today. For Capoxene medicine.</div>
<div>
<br /></div>
<div>
paper attached recommends to start with some help-like a partner or doctor or nurse.</div>
<div>
<br /></div>
<div>
Well, a] cannot do, b] why? and so c] is at 10:45am...</div>
<div>
<br /></div>
<div>
It will not be traumatic... just the start of a new treatment to alleviate the next effects of my MS.</div>
<div>
<br /></div>
<div>
Hmm, a new Start for sure.</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-24578544472057727592012-11-10T14:05:00.000+11:002012-11-10T14:05:15.929+11:00Decision made<h2>
Why did I have to decide?</h2>
<br />
Ernie my neuro wanted me to choose which MS medication.<br />
<br />
Does he not know which is best? Out of six?<br />
<br />
Hate that sort of thing.<br />
<br />
After reading some booklets all about the various drugs[?], the tablets looked good but the capoxone looks like the readiest and maybe works well, as my aunt thinks it is pretty good for her. A day of monitoring the tablet effects in a hospital bed put me off even if it is 50% effective.<br />
<br />
A text message was sent to the nurse to pass on the decision to Ernie, hope that means it is in the mail?<br />
<br />
And the greyness and macular degeneration LIKE effects in the left eye are slowly easing back thank goodness.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-81400178259897206592012-11-02T00:39:00.000+11:002012-11-10T13:57:31.936+11:00lil old visit<h2>
Visit to the neuro today</h2>
<br />
Another 3 hour trip to this side of The Big Smoke to see what I can do with the last episode still dimming my sight... and only two and a bit back, Not Speeding, and was a lil dampish road-wise.<br />
<br />
Hooray- Ernie said I can go on MS meds- capaxone looks good at 30% reducing the effect of an episode, but there is a new one that can be said to be 50% effective- Gelany<br />
<br />
Just the side effects... could be fun trying it all out I spose, this dim sight could be frightening next time.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-77570263277848664742012-10-30T01:33:00.000+11:002012-10-30T01:33:20.707+11:00I haf sum nuus<h4>
Good and bad news on last status-</h4>
<br />
Thanks to my aunt, I have gotten onto my neurologist's clinic, and got a booking earlier than January this week in fact.<br />
<br />
de bat nuus- still not 60% in the left eye- the orange street lights are now just grey glows in the dark.<br />
<br />
It was not good to be on the first geology job with a bung colour filter I tell you. I had to ask one of the fellas if some clay was brownish or reddish, that's what I'm losing out on- colour judgment.<br />
<br />
If it is just "optical neuritis", there is still the chance that it will come back to normal. I can nearly read this screen properly now, with funny after images chasing the words across the page, distracting me in shades of blue and yellow, through a greyish filter.<br />
<br />
Crossing my fingers that it will all be okay in a few more weeks, it's been three weeks so far... Maybe I can go onto capaxone[?] sooner than later, as joan wants me too.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-49162220191538546902012-10-14T17:46:00.002+11:002012-10-14T23:19:59.348+11:00Eyes are dim<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<br />
<h4>
Eyes are dim I really can see tho...</h4>
<br />
Documented today<br />
<br />
"Hi Joan<br />
My visual acuity is still the same in the left eye- but can read the screen with it, not like yesterday, maybe getting better. There is a slight ache behind and up the left ryr, and it sort of hurts to rub it too. My other concern is, is it a tumor etc growing near the optic nerve?<br />
<br />
Imaging:<br />
<br />
It is weird- concerns the after image mostly.<br />
<br />
Like when from my bed I look out at the hall wall, and move the doona half way up, there is an after image with purple pixelating speckling spots in the shade as it moves up, and a lasting darker after image when I drop the doona, while still looking at the wall of course.<br />
<br />
It is like there is a slow down of information, and time is needed to fill out an image properly to match the right eye.<br />
<br />
It makes it hard to read, the central focus spot is getting smaller than a few newsprint words in diameter, and that is with spectacles.<br />
<br />
For instance staring at a line of words and I raise to the line above, it is pixelating until I slow the rate of ye movement and it is recognisable again.<br />
<br />
Is this too much?<br />
<br />
Bye, I am off to work Monday<br />
Tony"<br />
<br />
A reply was to SEE A DOCTOR<br />
then referred to optic neuritis- which I checked and voila<br />
<br />
http://en.wikipedia.org/wiki/Optic_neuritis<br />
http://www.themcfox.com/multiple-sclerosis/ms-symptoms/optic-neuritis.htm<br />
Hmm- exactly!<br />
<br />
<br />
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left and right</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj89ObF8z08RHJkfT4I0ySa9c_yTzP_MM1Gwubpl7tpYpET7vYQ1qbNtGXrkUO95-xt4Rts6Uu86BgbIcjIsh1YiZq4VDHtE9NXFj98dPdiq5EhKeuogeX7BtGnMS_1EQH2_wS2auoTx9xv/s1600/IMAG0070_resize.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj89ObF8z08RHJkfT4I0ySa9c_yTzP_MM1Gwubpl7tpYpET7vYQ1qbNtGXrkUO95-xt4Rts6Uu86BgbIcjIsh1YiZq4VDHtE9NXFj98dPdiq5EhKeuogeX7BtGnMS_1EQH2_wS2auoTx9xv/s320/IMAG0070_resize.jpg" width="180" /></a></div>
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left like an after image sort of</div>
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The dimmness is nearly spot on, colour too brown here</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcFSSVHBNzOEFYv5TSj9-RlDrIWpzytsjVhjqFMt6kXsV6Mf0S79RaswELKVQMZWTbw__tb3oi1sNa8mm089MXVsHUKpm6RBAwrQ2mYhEtzUgUz26buj0M6iqxMoyxsRfyKweYeP4SdCVl/s1600/IMAG0079_resize.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcFSSVHBNzOEFYv5TSj9-RlDrIWpzytsjVhjqFMt6kXsV6Mf0S79RaswELKVQMZWTbw__tb3oi1sNa8mm089MXVsHUKpm6RBAwrQ2mYhEtzUgUz26buj0M6iqxMoyxsRfyKweYeP4SdCVl/s320/IMAG0079_resize.jpg" width="180" /></a>Left</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdM0TVfMUQiJzJ0DwYQn3JM9QoEsM1vXyPLJycj9gNnteCoN_grpycdMlpnFzI7GGV9Q-zPa5cwqxfWgOPZ5CgNqsCFgpIExQ4yG6zPGtLmPTBSB1pv-W20LnP7Iwr9ZZ2THljz60teBYO/s1600/IMAG0078_resize.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdM0TVfMUQiJzJ0DwYQn3JM9QoEsM1vXyPLJycj9gNnteCoN_grpycdMlpnFzI7GGV9Q-zPa5cwqxfWgOPZ5CgNqsCFgpIExQ4yG6zPGtLmPTBSB1pv-W20LnP7Iwr9ZZ2THljz60teBYO/s320/IMAG0078_resize.jpg" width="180" /></a>right</div>
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-28967901255196734032012-10-12T14:13:00.000+11:002012-10-12T14:13:29.060+11:00a letter<br />
Attn Ernie ****<br />
From Tony Ford, 146 Fitzroy Sale, 11/Oct/12<br />
<br />
Hello Ernie,<br />
I last saw you in February 2012. I wish to have a chat maybe or a reply about MS related(?) eye sight problem if the following information is not enough.<br />
You thought at the time that I had a pretty mild case of MS if at all.<br />
<br />
Yesterday, Wednesday 10/10, I stared out my window at some white flowers- thinking I had slept on my arm/hand with my face, as my left eye seemed rather reduced in capability- that is, like I was wearing dark sunglasses compared to the full glarey whiteness that the right eye seemed to perceive.<br />
<br />
Overnight. Because Tuesday I went to bed with “full capabilities” as discussed last visit. There is a reduced perception of ‘redness’ of the right eye still.<br />
<br />
My optometrist and my GP suggested I better get in touch with you about this and think about a course of capaxone(?) soon. As my case notes state, my father’s sister has MS, and she has in the past related that the sooner I get on something the better I will be.<br />
<br />
After the eye episode, I was in a panic mode, as I drive a lot for a living, and to tell the next thing, I started a new (Geology consulting field) job today.<br />
<br />
I did think maybe it was an anxiety related episode.<br />
<br />
As I type this, it is still hard to read the screen with the left eye alone- like a macular degeneration effect in patches making it hard to concentrate when reading, and with a grey filter on whiteness (flowers, a white wall)- almost like the trick of polarised lenses.<br />
<br />
There is a slight ache around the eye orbit(?) back around behind the eye too.<br />
<br />
The only symptoms(?) I can relate is a slight cold like infection that lasted a few weeks before hand, and a small dose of the runs Tuesday, if that makes any sense.<br />
There was also a small tingling effect down the right side in some places about a few weeks ago when I leant my head forward, for a few minutes only, not since.<br />
<br />
Barrie the optometrist found nothing wrong on inspection yesterday-<br />
I said I would have you informed that I visited if you need some retina images.<br />
<br />
I will be in the field the next two weeks, but would appreciate your time, attention and soonish response on this matter, I know you are probably run off your feet in the type of thing.<br />
<br />
Kind regards<br />
<br />
Tony Ford<br />
Sale<br />
<br />
<span style="font-family: Arial, Helvetica, sans-serif;">Since this was sent, last night, I have tried to evaluate whether 48 hours after this blindness(?) has changed.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I think it is a little worse, texting takes twice as long anyway.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Typing this is not to bad with both eyes, but with only theright I really have to PECK slowly at the keyboard!!!!!!!!!</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Sight is smudgier too I think.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">Ernie has not replied as I type this out.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">I love reading, and if this gets worse, how can I drive at night, or even through the city.</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">thinking that I should have pushed the medicine regime, what ever the small side effects.</span><br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-39111208461319713472012-10-10T20:39:00.002+11:002012-10-12T22:56:34.844+11:00WHAT THE?That's Not Quiet Right!<br />
<br />
After I got up to make coffee this morning, after the howling fighting horde had whizzed off to school, I looked out at Tarn's jasmine bush with its white flowers tumbling over the...<br />
<br />
WHAT THE?<br />
<br />
It was foggy smoggy and weird. I rubbed my eyes to clear them up as I had done since I was a kid.<br />
<br />
The Same...<br />
<br />
Oh oh.<br />
<br />
Yes, the <strike>right</strike> left eye had lost definition as if some pixels could not recognise all the colours of the white flowers.<br />
<br />
The sky and well everything was like seen through a smoked and vaselined lens.<br />
<br />
Bloody bugger!<br />
<br />
Looks like another MS episode.<br />
<br />
Or macular degeneration.<br />
<br />
Got on to the eye doc, my aunt with MS and the local doctor.<br />
<br />
Nothing to do, looks like the neurologist needs a call and get onto the "capaxone" asap?<br />
<br />
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguKKP03QXaz5064PHmHq3bOiCNMsDiytluRWOBNBy2zge4Z-ivINBGT8m15YnNL7IpIaO24PkOBVlV46s0kJaN2luaynJZJf_kKMI1SjAZGO6KVFy_DM1L5-tnjfnAquGAwaCEXTrp7y0C/s1600/IMAG0052+3_resize.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguKKP03QXaz5064PHmHq3bOiCNMsDiytluRWOBNBy2zge4Z-ivINBGT8m15YnNL7IpIaO24PkOBVlV46s0kJaN2luaynJZJf_kKMI1SjAZGO6KVFy_DM1L5-tnjfnAquGAwaCEXTrp7y0C/s320/IMAG0052+3_resize.jpg" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">left eye</td></tr>
</tbody></table>
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7ZY2mixLUSSiahlX89IuIMUA24IUPf-B1tMrn9vRvG_XHsMqrzE9Julhz4r9M23ICcDFjwYz9_l2EcVDCv6_uegeD_moN5luh4Fqn0ENcX4qXdY2223g1Q1kAfylnDgwAZC7XMWtYVO-O/s1600/IMAG0052_resize.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7ZY2mixLUSSiahlX89IuIMUA24IUPf-B1tMrn9vRvG_XHsMqrzE9Julhz4r9M23ICcDFjwYz9_l2EcVDCv6_uegeD_moN5luh4Fqn0ENcX4qXdY2223g1Q1kAfylnDgwAZC7XMWtYVO-O/s320/IMAG0052_resize.jpg" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">right eye</td></tr>
</tbody></table>
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<br /></div>
I tried to see what I could do to show what was wrong, and may add to it-<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-87488635092922515842012-08-31T21:35:00.000+10:002012-10-02T12:58:41.255+10:00AugustLast week<br />
<br />
The twinge came back, for a half hour, lower back, when nodding. For about 15 minutes<br />
<br />
I fell over when turning and answering my mobile phone! It might have been my ankle sprain avoidance routine as it was rough ground, but surprised the shit out of me! I do not wanrt to blame it as a symptom, but...<br />
<br />
I looked at my latest MRI scan, and could not tell if anything had changed- ah well, will have to wait for February check up.<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-19362999171774804982012-07-28T20:07:00.000+10:002012-07-28T20:08:35.010+10:00Just another scan<h2>
Second Scan</h2>
<span style="background-color: white;">Last February m</span><span style="background-color: white;">y neurologist asked me to get a second MRI scan, to be done mid year, in order to compare the scan done last year.</span><br />
<span style="background-color: white;"><br /></span><br />
<span style="background-color: white;">There was a cancellation this week, and the operators called me to jump ahead a few weeks. If I liked.</span><br />
<span style="background-color: white;"><br /></span><br />
<span style="background-color: white;">Yep.</span><br />
<span style="background-color: white;"><br /></span><br />
<span style="background-color: white;">Took home the disk with the images and had a look for any differences from the last scan.</span><br />
<span style="background-color: white;"><br /></span><br />
<span style="background-color: white;">And I cannot tell, so will wait. Easy.</span><br />
<span style="background-color: white;"><br /></span><br />
<span style="background-color: white;">No other symptoms to recall the last few weeks.</span><br />
<span style="background-color: white;"><br /></span><br />
A cold does not count. Although... It did start last Monday, and really slow to get to the coughing stage....<br />
<br />
Ah well.<br />
<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-36555202058006207012012-06-15T14:05:00.001+10:002012-06-15T14:05:41.556+10:00tingle in my left leg<h3>
Tingle in my left leg back after absent almost a year</h3>
<h4>
Cold and Twinge, another <i>diary </i>entry on symptoms</h4>
<br />
As I sit at my desk at lunchtime, I noticed that the symptom of a cold damp feeling is back on the skin of my thighs. Was not like that yesterday as much. It is winter, yes, but not that dang cold in the house. <span style="font-size: xx-small;"><i><a href="http://tonyf.customer.netspace.net.au/weather/trends.htm" target="_blank">Check my weather station!</a></i></span><br />
<br />
And then, to see what else may be going on... I nodded my head and there was a <b>tingle</b> in my left leg! Again, like last year. As I test it now, that feeling is not there. The cold is, like a mentholated cold rub.<br />
<br />
This time the tingle was just below the knee, the left side, on the outside, next to the calf muscle. In the skin more or less. Like when you have feeling coming back after a dental intervention with your mouth an lips, or recovering from a pins-and-needles session, just that twinge in the leg. <b>Not </b>like knocking your elbow's funny bone type feeling.<br />
<br />
Great. But would you guess what is really weird?<br />
<br />
Earlier today I got a call at 8.30am, from the transportable* MRI people, to book a session for the what may become an annual event, <b>"Scan Tony's Head for more MS scars".</b> With the last scan, it could be seen there are only a few peas sized blebs inside my skull, and a shading in the spinal cord in the neck.<br />
<br />
Now how coincidental is that?<br />
<br />
Booked for August, yay me.<br />
<br />
<br />
<br />
<br />
*Where I live is about an hour from the nearest institution that has a MRI clinic, BUT the local hospital <b>does </b>have a visiting MRI that is transported about the region, which is so so convenient for us country folk, oh yeah.<br />
<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-44194675363387946742012-05-31T11:40:00.000+10:002012-06-12T21:08:28.902+10:00wet Toe dry boot<h2>
Yes, a <span style="color: blue;">Wet Toe</span>, but <span style="color: orange;">fresh dry sock</span>?</h2>
<h3>
<span style="color: orange;">Dry boot too.</span></h3>
<br />
Is it me or the boot?<br />
Maybe I need new boots?<br />
Just a daggy dad looking for nothing bad... Just onset or mild MS?<br />
<br />
But three pairs of footwear [bootish style] and the strange feeling of having a wet big toe or half the left foot feels like it's wet. Sometimes.<br />
<br />
When I am sitting usually. Here at the desk like.<br />
<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiS2rTBPDv-TN3zdu53_OrnvufYsKRYu3deiSIMs5sCmdUNIkc3Qi3DHuUBs_px0aZ_EbDISpLI-43_DQR_WX8SPPbjQQi0UTHNfbLpxJobc5MPgtrjEOsnNC8U2Qut7KjAS1T7GMGCV1qI/s1600/IMAG2288_resize.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiS2rTBPDv-TN3zdu53_OrnvufYsKRYu3deiSIMs5sCmdUNIkc3Qi3DHuUBs_px0aZ_EbDISpLI-43_DQR_WX8SPPbjQQi0UTHNfbLpxJobc5MPgtrjEOsnNC8U2Qut7KjAS1T7GMGCV1qI/s320/IMAG2288_resize.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Wet toe dry foot. </td></tr>
</tbody></table>
<br />
Or maybe while watching the teev in the Moran Armchair <span style="font-size: x-small;">that is not quite right lumbar-wise</span>; <span style="font-size: x-small;">the cat is drippingly purring all over my pot belly while I try to switch channels or reach the wineglass without upsetting her...</span><br />
<span style="font-size: x-small;"><br /></span><br />
And sort of nearly stumbling sometimes, you know, tripping over the toe of your shoes/boots and looking back for that crack on the path or floor that you KNOW was not there anyway.<br />
<div>
<br /></div>
Is this what it means to have a slowly spreading build up of scarring scabular neurons in the head (where else stupid?). A numb feeling, strange feeling, or what?<br />
<br />
Note from mid may 12<span style="color: #674ea7;"> </span><br />
<span style="color: #674ea7;">next symp </span><br />
<span style="color: #674ea7;">cold wet toe while in comfy socks and boot</span><br />
<span style="color: #674ea7;">strange cold? numb feeling while seated in car for a while</span><br />
<span style="color: #674ea7;"><br /></span><br />
<span style="color: #674ea7;">left ring fingre- tingling at end</span><br />
<span style="color: #674ea7;"><br /></span><br />
<span style="color: #674ea7;">on top of the 'cracking' knuckles a lot.</span><br />
<br />
<br />
My dear brother is encouraging me to speak to my aunt that has had MS for about twenty years, she would be good to talk to- I do not know, we skyped once while she was overseas earlier in the year and she wanted me to go on meds straight away and the neurologist I have met about that, one consult mind, said, "Nah not yet".<br />
<br />
Dunno. Yet. Feels too personal, even sort of avoided everyone this year at the annual cousin party in the country at Easter so not to feel 'special'.<br />
<br />
It is not like last years episodes of when I nodded in the van and I had patches of tingly feelings down the left leg from the bum cheek. Which turned out repeatable over a few months only, thanks for asking... <span style="color: #666666; font-size: x-small;">That's the scientist in me- has to be repeatable!</span><br />
<br />
Oooooh-wah?<br />
LEFT side?<br />
Maybe related to the MS after all! Just a fake wet Toe dry boot?<br />
<br />
PS to me- Just noting what's goin' on man, watching for symptoms?<br />
<br />
PS2 Later on- I figured the strange feeling, which tonight seems to be spreading to my thigh on both legs is like a menthol rub, cold type.<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4419322837187010588.post-5490210510264732912012-05-11T21:29:00.000+10:002012-06-12T21:08:47.682+10:00Floored<h2>
Not Hygenic</h2>
<br />
I like to make dinner, and early. Especially if the descendents have to go out.<br />
<br />
Late yesterday afternoon, I spent some time making a quiche.<br />
<br />
Once cooked, removed it from the oven with a cloth.<br />
<br />
Repeat, A Cloth.<br />
<br />
So burnt myself and dropped the lot, on the floor, where a cat had been waiting impatiently for scraps about 20 minutes beforehand.<br />
<br />
Binned. Shrug. Have to.<br />
<br />
A descendent <strike>removed </strike>retrieved some frozen party pastries, and why not, the oven was still hot.<br />
<br />
I put them on a tray.<br />
<br />
I came back to see if they were cooked.<br />
<br />
I had <b>not </b>put them in the oven, and descendent was to be at band hall soonish as well...<br />
<br />
So there was no band hall practice- the sore foot was just the final excuse not to venture on the road.<br />
<br />
Was it due to MS somehow? A clumsiness inherent in the dis-order?<br />
<br />
Dunno.<br />
<br />
Maybe this should be filed <a href="http://tone-in-oz.blogspot.com.au/" target="_blank">here </a>instead, like, bad luck to be born a duck, or filed <a href="http://daggydad.blogspot.com.au/" target="_blank">here </a>under overcooked, over worked and underpaid?<br />
<br />
<br />Unknownnoreply@blogger.com0