dec 2014
currently
cold weird feeling end of left foot
nil bidy twinges
last MRI, no new developments since last year
all good
and new medcine as capsules[/] rather than injections. sounds real good
04/12/2014
14/06/2014
this date, mid June-2014
this date, mid June-
have had slight numbness over a coin size area of pointer knuckle right hand for a few months
extreme tiredness One day- weird.
Weakness in right leg one day- sort of collapsed mid step walking down stairway to ground? interesting, once only.
Extreme weakness combined with lack of sleep resulting in walking and falling over- or was that a few drinks?
Some tingling down the legs with bending the neck, a few times a month but not for more than when it is noticed- odd- like it is not all the time!
Eyesight in left side appears to be returning to ful strength after nearly 21 months- still could not count on reading with it alone, but driving and all else- just fine. And about time too- 6 weeks recovery my thin ass.
23/11/2013
24/09/2013
post august '13 consult- not too bad
post august '13 consult- not too bad
Dr 'D' says of the last MRI in July, a new pea sized lesion in the brain. The post august '13 consult- not too bad after all!
Great. Well. Well. Well. Three holes in the desert... Was there a little superiority noted by self when the doc could not see how to view three CD's of MRI images at once? Yep. But she did appreciate the tip- if a program is on disk, then copy it and data files to temp folder, and use it to resuscitate a "dead" imaging file on a "faulty" CD, and then go and compare the annual file images- Voila! Well, it took a little time out of the following patients time I reckon, but then, learning never hurt anyone... Unless a diagnoses learnt does... Argh.
Was nice to say to her that since I have been on one of the recommended treatment that there has been no significant relapses since the left eye deal last year, the week before the new consulting job.
The last few months have been relatively free of the numb and tingly symptoms too, but have noticed that there is a slight relaxation in the bladder control after urinating, the last few drops manage to spoil things, and this is rare, and after dinner too. Weird. A fold of the willy in the jocks is a fix I think..
Which means that the post august '13 consult- not too bad result is good. It is still only a mild onset of MS. The capoxone may be holding off symptoms- just think that a oral tablet treatment would be less stressful and worrisome when working in the desert if more work comes up- keeping it cool may be a hassle.
18/07/2013
Latest scan- mmm
Latest scan- mmm
Not being a specialist- from the data disks that I can access of the grey crap in my noggin- I cannot tell what is going on.
I think that the pea sized bodies in there are the same.
Looking for schleria[?] on the left eye nerve myself showed me nuthin, nuthin, nuthin.
Will have to wait for next visit to see what E.Butler and co. can find.
The left eye situation varies day to day oddly enough- sometimes I can read sentences and the road looks gret as well, or, vision seems greyed over, and words hard to make out.
Different every day.
Latest scan, mmm. I cannot tell whether status quo is as last year or not. Bugger.
12/07/2013
Nine months
Nine months
On copoxane
Since the start of the course of medicine-"copoxane", very occasionally there are little tingly feelings in back and sometimes in the legs.No episode or attack on the temple.
MRI next week, to see how well(?) the leedle pea bodies in the grey matter are growing.
Thought the effect of colourlessness in the left eye would be bad for the job- at least a little bit, but no, not affecting the job as long as someone else can verify we are calling a red "red" etc etc.
Wonder about reading street trraffic signs from afar though- better not have an attack on the right eye- else will be no good for reading/driving/describing rock colours or seeing what needs to be recognised.
Not depressed- just amazed at evolution, and coping strategies the DNA deals out.
05/05/2013
misbehaving vision
AS i TRY TO WRITE THERE IS A broken RING IN MY VISION
Yes, a new symptom of my version of MS I reckon.
Only about an hour ago, there was speckling occurring, a shimmering or glittering like a thin curving squiggly line nearly in my line of sight.
It was a 3/4 circle almost. A fracture there.
It was smaller, like less than a palm width at arms length.
Now as I write it is to the left, with both eyes shut or open, very slowly spreading like waves from a dropped pebble in a still pond.
I thought at first I had looked at the desk lamp, the old image of what is left when staring at then away from something.
No, it is glistening, a line, snakey or zigzaggy. Pixellation. Is it fading away?
Great, my work depends on Looking at things, and driving too.
Yes, a new symptom of my version of MS I reckon.
Only about an hour ago, there was speckling occurring, a shimmering or glittering like a thin curving squiggly line nearly in my line of sight.
It was a 3/4 circle almost. A fracture there.
It was smaller, like less than a palm width at arms length.
Now as I write it is to the left, with both eyes shut or open, very slowly spreading like waves from a dropped pebble in a still pond.
I thought at first I had looked at the desk lamp, the old image of what is left when staring at then away from something.
No, it is glistening, a line, snakey or zigzaggy. Pixellation. Is it fading away?
Great, my work depends on Looking at things, and driving too.
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